A Mother's Journey: Finding Meaning While Raising a Child with Cerebral Palsy
Main Article Content
Anisa Nurul Imaniana
Gamal Maulana
This study originates from the researcher's interest in a mother who has a child with cerebral palsy but is able to find meaning in life despite the challenges she faces. Being a mother to a child with developmental disabilities is not easy, yet the subject of this study strives to find meaning in every difficult experience. The purpose of this study is to understand how the subject, as a parent of a child with cerebral palsy, discovers meaning in life. Life's meaning encompasses what is considered important and valuable, providing special significance to an individual's life. This meaning can be found in both positive and negative circumstances, in happiness and suffering. The process involves realizing opportunities within certain situations and understanding what can be done. This qualitative study employs a descriptive case study design, with data collected through interviews and observations of a single subject. Data validity is ensured by also interviewing a significant other. The analysis reveals that the subject's meaning in life is reflected in her life goals, such as improving her living conditions, owning a house, and hoping her child becomes independent.
Abdul Salim Ch. (2009). Pediatri Sosial dalam Pendidikan Luar Biasa. Jakarta: Direktorat P2TK dan KPT, Dikti, Depdiknas.
Abdul Salim & Munawir Yusuf. (2009). Pendidikan Anak Berkebutuhan Khusus Secara Inklusif. Surakarta: FKIP Universitas Sebelas Maret.
Anggraini, R.R. (2013). Persepsi Terhadap Anak Berkebutuhan Khusus. Jurnal Ilmiah Pendidikan Khusus, 1, 258-264.
Bastaman, H.D. (2007). Logoterapi: Psikologi untuk Menemukan Makna Hidup dan Meraih Hidup Bermakna. Jakarta: P.T. Raja Grafindo Persada.
Budiman, Arif. (1973). Chairil Anwar: Sebuah Pertemuan. Jakarta: P.T. Dunia Pustaka Jaya.
Frankl, V.E. (1959). Man's Search for Meaning: An Introduction to Logotherapy. New York: Pocket Books.
Frankl, V.E. (1984). Man's Search for Meaning: An Introduction to Logotherapy. New York: A Touchstone Book, Simon & Schuster.
Friedmann, M.L. (2003). Family Nursing: Research, Theory, & Practice. 5th Edition. New Jersey: Pearson Education, Inc.
Irwanto, Kasim, & Rahmi. (2010). Analisis Situasi Penyandang Disabilitas di Indonesia. Jakarta: Pusat Kajian Disabilitas, Fakultas Ilmu Sosial & Politik, Universitas Indonesia.
Koeswara, E. (1992). Logoterapi: Psikoterapi Victor Frankl. Jakarta: Kanisius.
Levitt, S. (2004). Treatment of Cerebral Palsy and Motor Delay. 4th Edition. Massachusetts: Blackwell Publishing.
Mangunsong, F. (2011). Psikologi dan Pendidikan Anak Berkebutuhan Khusus Jilid I. Jakarta: Lembaga Pengembangan Sarana Pengukuran dan Pendidikan Psikologi (LPSP3), Universitas Indonesia.
Papalia, D.E., Olds, S.W., & Feldman, R.D. (2009). Human Development: Perkembangan Manusia. Jakarta: Salemba Humanika.
Rosenbaum, P. (2003). Cerebral Palsy: A Guide for Care. Baltimore: Brookes Publishing.
Santrock, J.W. (1998). Perkembangan Masa Hidup: Life-Span Development. Jakarta: Erlangga.
Santrock, J.W. (2001). Life-Span Development: Perkembangan Masa Hidup (Edisi Kelima, Jilid II). Jakarta: Erlangga.
Sugiyono. (2007). Metode Penelitian: Pendekatan Kuantitatif, Kualitatif, dan R&D. Bandung: Alfabeta.